Back to Living with Hepatitis C
Jacques Chambers, CLU
Posted September 19, 2012
"Can I do some work without affecting my disability benefits?” This is a common question for people collecting total disability benefits. Being able to work, even part-time can also improve the spirit and can help alleviate the depression that often accompanies total disability as well as supplement the disability income. However, people are often hesitant to try any type of employment out of fear that it may jeopardize their disability benefits. This article reviews working while collecting Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), and disability benefits provided by private insurers.
The first rule of working while collecting disability is to thoroughly understand the rules so your benefits don’t get unexpectedly stopped. These rules vary depending on what program you are collecting from.
Private disability insurance contracts vary from policy to policy; most provide for partial benefits while working; many provide training to help reenter the work force. It is very important that you review your own contract and understand what your policy provides, if anything. You may want to consult with a benefits counselor if the contract wording is difficult to understand.
If your disability policy was purchased individually by you, even if there is no partial disability benefit, you can always return to work and start paying premiums again so the coverage will be ready for you if you cannot continue working at a later date.
If, however, your private disability insurance coverage comes from a prior employer, returning to work can be the end of access to that coverage. It’s more important to understand how your plan functions before trying to return to work. The most common provision in disability insurance policies will continue benefits in proportion to how much you are earning by working. For example, if you are earning 40% of your old income, adjusted for inflation, the carrier will pay you 60% of your regular benefit.
Note that many of the suggestions for working given below with SSDI or SSI can also apply to private disability insurance.
Both Social Security disability programs, Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) offer incentives to encourage you to attempt some work without necessarily losing benefits. However, it is important before starting to earn any wages that you thoroughly understand Social Security’s rules about work. Mistakes and misunderstandings can result in overpayments that must be paid back to Social Security as well as the possible loss of future benefits.
The rules for working are totally different between SSDI and SSI. If you are receiving both SSDI and SSI, both sets of rules apply which can really complicate the process.
Before going into the rules of the two plans, there are some important points to be aware of that apply to both plans:
Consider a “Dry Run.” Before attempting to do any type of regular work for wages, make sure you can physically and emotionally handle a regular schedule. A person who has not had to maintain a regular schedule for some time may find that the stress and physical demands can quickly overwhelm a fragile health status. Start with a volunteer project, doing anything as long as it involves some regular hours and no wages. It may be anything outside the home, whatever you may feel capable of doing for one to four hours a day. The important issue is the schedule, not the work. See how you react to having to get up every morning and go somewhere for a few hours, five days a week. Two or three weeks of this will give you a good idea of how well you might handle some employment and how much work you could do in a day or a week without it affecting your health.
Keep careful records of income and hours worked. Once you start working for wages, keep all paycheck stubs. Also, maintain records of your work hours. Make sure that the records show not only gross pay, but also net pay, hours worked, and time period when the wages were earned.
Keep receipts and records of any additional expenses you incur due to working and your disability. Social Security allows you to subtract from your earnings any out-of-pocket medical expenses you incur that are necessary for you to work. This can include the cost of special transportation to and from work, prostheses and assistive devices, even medical expenses such as acupuncture, massage therapy or chiropractic treatments.
Tell Social Security of your plans to work. Unless you are going to be earning less than $720 per month, you should notify Social Security of your plans to attempt to do some work. To preserve a record of your notification, either mail them a certified letter, keeping a copy, or personally deliver a letter outlining your plans to your local office and get a signed receipt for it.
Some people are afraid to tell Social Security about working because they fear that it will trigger a review of their disabled status. While that may seem like a rational concern, it does not turn out to be the case. The time for the next Continuing Disability Review is set at the time one is completed. Social Security is much too overloaded with work to track and compare people trying to work with their Disability Review dates.
How your wages affect your disability benefits depends on whether you are collecting SSDI or SSI benefits. Both look at what is called “Countable Income” or “Countable Earnings.” Countable Income is the gross amount of your earnings less any expenses necessary to keep you working and less any subsidized earnings provided by your employer. See www.ssa.gov or the publications listed above for more on Countable Income.
Social Security Disability Insurance (SSDI) – Working with SSDI is an all or nothing type of program. You can collect your full SSDI benefits and earn all you are able to earn for nine months. These nine months are called the Trial Work Period.
Any month that you have Countable Income of $720 in 2012 or more will count as one month in the Trial Work Period. That means that you can earn $5,000 per month or more for nine months and still receive your full SSDI benefits for each month. It also means if you gross less than $720 per month, you don’t need to notify them immediately; just keep all the records. The Trial Work Months do not have to be consecutive, but are cumulative over a five year period.
Once you have used all nine months of the Trial Work Period, you will still receive your full SSDI benefits as long as your income does not exceed what Social Security calls Substantial Gainful Activity. In 2012, Substantial Gainful Activity is Countable Income that exceeds $1,010 per month.
Note to Self-Employed persons: Regular business expenses are subtracted from earnings to arrive at Countable Income.
Supplemental Security Income (SSI) – SSI treats wages from work more as an ongoing possibility where SSDI considers it to be part of a progression back to full-time employment. It is not unusual for someone to work regularly at a low paying job and still qualify for some SSI benefits indefinitely.
SSI looks at your wages each month and computes your SSI benefit for the month based on how much you earned (your Countable Income) in that month. This is one reason for the importance of keeping your own records.
SSI ignores the first $20 each month you receive whether from earnings or SSDI or anywhere else. SSI will also let you keep the next $65 of your Countable Income.
Any earnings above $65 (+ $20 if applicable) will be used to reduce your SSI payment for that month, reducing the SSI benefit $1 for every $2 that you earn above $65. To compute this, ½ of the remainder is subtracted from your SSI payment.
For example, assume SSI is paying you $674 (the federal amount for a single person in 2012). If you have no income other than SSI and work earnings, use $85 instead of $65 in the calculation below. Assume you had Countable Earnings of $365.
$365 less $65 leaves $300.
$300 X .5 = $150.
$674 (normal SSI) – $150 = $524 which will be the SSI payment for that month.
$524 (SSI) + $365 (wages) = $889 will be your total income for that month.
Obviously, Social Security does not have the ability to do this calculation before they send out each month’s payment. These calculations are all done some time later, so it is very important that you maintain your own records and set aside any money that was an overpayment, because eventually Social Security will be asking for it back. At least it can earn interest while you have it.
As you can see, the rules for working while collecting disability are fairly complicated and the repercussions for not following them can be expensive. If you feel well enough to attempt some type of employment, it can help you financially and, more importantly, emotionally. Just be sure you know the rules before you start working.
Confused about applying for disability? Click here
[Jacques Chambers, CLU, and his company, Chambers Benefits Consulting, have over 35 years of experience in health, life and disability insurance and Social Security disability benefits. For the past twelve years, he has been assisting people with their rights, problems, and other issues concerning benefits and disability. He can be reached at firstname.lastname@example.org or through his website at: http://www.helpwithbenefits.com.]
Copyright September 2012– Hepatitis C Support Project - All Rights Reserved. Permission to reprint is granted and encouraged with credit to the Hepatitis C Support Project.
Back to Living with Hepatitis C