| Explore the online resources
below to learn more about hepatitis C.
For links to online support forums, listservs and chat rooms, click here
UNITED STATES AND CANADA
AACLA
African American Coucil on Liver Awareness (AACLA) - A non-profit organization consisting of African American professionals in the field of medicine, social service and community-based organizations, lending their expertise in the gathering and disseminating of information as it relates to African Americans and liver disease. For information, contact the AACLA at: 1.816.761.8472 http://www.aacla-national.org
ACRIA
This link brings you to a searchable database of enrolling HIV-related
trials, including hepatitis co-infection, throughout the United
States.
American
Liver Foundation
Patient materials on all types of hepatitis
Americans with Disabilites Act
For information and technical assistance about the Americans with Disabilities Act (ADA) contact the ADA Information Line
800-514-0301 (voice)
800-514-0383 (TTY).
ADA Specialists are available to provide ADA information and answers to technical questions on Monday, Tuesday, Wednesday, and Friday from 9:30 a.m. until 5:30 p.m. or on Thursday from 12:30 p.m. until 5:30 p.m. (Eastern Time).
CalHEP
The California Hepatitis Alliance (CalHEP) seeks to reduce the scope and consequences of the hepatitis B and C epidemics, which disproportionately affect California’s ethnic communities and the socioeconomically undeserved. Committed to culturally competent public education and awareness, CalHep focuses on sound public health policy and advocacy to improve California’s public health approach to liver wellness.
Center
for Addictive Problems - CAP
Provides information on treatment and recovery from addictive
problems. Located in Chicago and Maine.
Centers
for Disease Control – Hepatitis
Information on HAV,HBV and HCV - simple and easy to understand.
Patient materials in English and other languages.
CenterWatch
Clinical Trials Listing
Lists some of the current clinical trials on hepatitis C.
The
Combo Survival Guide A to Z
Created with the assistance of Dr. Hoofnagle at the NIH, this
group of 3 ladies produced a beautiful guide to surviving
treatment. Although the guide is for combination therapy with
interferon and ribavirin it remains very useful for all patients
on therapy.
Dietitians
of Canada
A good resource for nutritional information for providers
and patients.
DocMisha.com
Information on Eastern treatment and healing approaches by
Misha Ruth Cohen, O.M.D., L.Ac. Features include an overview
of Chinese medicine, HIV Wellness Center, and Hepatitis Help
Area.
Dr.
Ben Cecil's Website
Offers information on the treatment and advocacy of hepatitis
C offered by Ben Cecil, MD. Features include a medical photo
gallery with clinical photos and captions.
Drugs@FDA
Drugs@FDA, a piolot project, is a searchable Web site containing
information about prescription, over-the-counter, and discontinued
drugs. It includes links to drug approval letters, labels,
and review packages.
Fisher's
Specialized Pharmacy Services
An independent, full-service pharmacy specializing in hepatitis
and HIV medications. Also includes general information about
prevention,diagnosis, treatment, and support for hepatitis
C and HIV.
GastroHep.com
The global on-line resource for all aspects of gastroenterology,
hepatology and endoscopy.
Health
Canada
This link brings you to all of Health Canada's resources,
programs and publications on hepatitis A, B and C in both
English and French.
Hep
C Caring Ambassadors Program
HCV Manual from Caring Ambassadors Program: Hepatitis C Choices.
This wonderful resource is some 400 pages long. It covers
all aspects of treatment including Western allopathic medicine,
ayurvedic, naturopathic, TCM and Mind-Body work….and
much more. You’ll be amazed.
Hep C Connection
HepC Connection is a unique support system established in
Denver in October 1995 to assist HepC-challenged individuals
and their families.
Hep
C Quilts
The Hep-C quilts are made up of patches submitted by people
from all over the world with Hepatitis C. They are sewn together
by Marie Stern in her spare time. Marie possibly contracted
the HepC virus in 1978 and Auto-immune Hepatitis several years
later, and this is her way of helping the HepC community to
be heard and seen. The first quilt was created in 1996. It
became so large that Marie started a separate one a year later.
There are now four quilts for display with the fourth one
having blank squares to be filled in at functions. (new photos
to be displayed soon) The quilts are available for display
at various public and private functions.
Hep
Quest
Provides the latest news and current data available on hepatitis
C, as well a information for newly diagnosed. The site aims
to prepare patients for further discussions with their doctors
and nurses. Features includes sections for professionals,
multi-media library, and events.
Hepatitis
C Advocacy Network
Hep C Advocate Network, Inc., (HEPCAN), a non-profit is national
organization started by persons living with hepatitis C, persons
with loved ones living with hepatitis C and medical professionals
working in the field of hepatitis C. Features included education
and advocacy.
Hepatitis
C Association
Provides education on the hepatitis C virus for the general
public and for medical professionals. Promotes awareness of
hepatitis C through programs through prevention, protection
and healthy practice programs.
Hepatitis C Multicultural Outreach
Offers free screening, testing and counseling for HCV, HIV, STD and adult vaccinations, with particular focus on the African American, Hispanic/Latino and the Native American communities where health disparities flourish.
Hepatitis
Education Project
Created to help raise awareness among patients, medical personnel
and the public about the facts concerning hepatitis patients
and the resources available to help those who live withthe
disease. Highlights include newsletter, links, and support
group handbook.
Hepatitis Foundation International
The Hepatitis Foundation International (HFI) is dedicated to the eradication of viral hepatitis, a disease affecting over 500 million people around the world. We seek to raise awareness of this enormous worldwide problem and to motivate people to support this important – and winnable – battle.
Hepatitis
Magazine
Hepatitis is the single national magazine dedicated
to patients of hepatitis B and C. This quarterly resource
is designed to assist hepatitis patients and their families
in taking control of their health care by providing current,
comprehensive information in one source. Includes current
issues, archives, subscription information, and support information.
HepCBC
Informational site providing resources, education, and support
for the hepatitis C community. Features include a newly diagnosed
section, art for healing gallery, and a hepatitis C culture
page which lists films and music about hepatitis C. Home of
Peppermint Patti's FAQ (English & Spanish) the Advocate's Guide to Hepatitis C, and the hepc.bull.
hepCmeditations project
Home of the audio CD “Self-care for Hepatitis C: Applied Meditation for a Healthy Liver” by Margo Adair and Robin Roth.
Hep-links
Your guide to hepatitis websites. Hep-links.com is a cooperative initiative between various hepatitis C patient
group associations in over 10 countries across Europe, Africa and the Middle
East, but it provides listings worlwide.
hivandhepatitis.com
Provides accurate, timely information about treatment for
HIV/AIDS, chronic hepatitis B and hepatitis C, and co-infection
with HIV/HCV and HIV/HBV. New information is posted regularly.
Immunization
Action Coalition
Showcases programs across the United States that work to prevent
hepatitis A, B, or C in people who are at risk for infection,
including adults and adolescents.
InterMune
Pharmaceutical web site that features information on hepatitis C with
resources for medical providers and patients
Janis
& Friends
Hepatitis C message boards, education, and support offered
in memory of Janis Morrow.
Medical
Advocates for Social Justice
The mission of Medical Advocates for
Social Justice is to advocate for and facilitate access to timely
and appropriate healthcare for all who have or are at risk of
life-threatening endemic and epidemic
infectious disease and who are disenfranchised from such access
because of poverty and/or discrimination
Medscape
– Hepatitis C
Information for medical providers and patients. CME programs,
ask the expert program.
NATAP
National AIDS Treatment Advocacy Project is a New York non-profit
organization providing information and news on hepatitis B
and C, and HIV. Features include newsletter, radio shows,
and events.
National Canadian Research Training Program in Hepatitis C
The NCRTP-HepC seeks to build research capacity and awareness in hepatitis C that will one day result in better management of the disease by providing stipend support and training to graduate, post-doctoral students and MDs with demonstrated excellence and a passion for hepatitis C research. The training program employs the knowledge and experience of twenty-eight mentors across Canada from multiple disciplines; each mentor is recognized for their expertise in various areas of hepatitis C research and their ability to train excellent researchers.
National
Conference on State Legislators Web Site
Follow this link for a State by State List of Pharmaceutical
Assistance Programs for Seniors, Disabled, Uninsured and others.
National
Institute of Diabetes and Digestive
and Kidney Diseases (NIDDH),
NIH
Simple and easy to understand patient information and brochures
on hepatitis C.
National
Institutes of Health, Alternative and Complementary Medicine
– Hepatitis C
Information on various forms of complementary and alternative
medicine including herbs.
NIH
Consensus Development Conference on Hepatitis C
The consensus statement for the NIH Consensus Development
Conference on the Management of Hepatitis C: 2002, held June
10-12, 2002, is now available on the Office of Medical Applications
of Research (OMAR) Web page.
O.A.S.I.S Clinic
Information for patients--personal stories and on-line videos
featuring real people with hepatitis C.
Parents
of Kids with Infectious Diseases
Supports families whose children have been affected by viral
hepatitis, HIV/AIDS and other diseases, and educates the public
about effective disease prevention practices. Highlights include
organ donation, help for families, and a Just For Kids section.
Patient Assistance Programs
Patients will be directed to the public or
private programs most likely to meet their needs. The Partnership for
Prescription Assistance helps qualifying patients without prescription
coverage.
Prisonplace.com
A place for families and friends on the outside. We have designed PrisonPlace.com to be an online community that is specifically designed for families and friends of inmates; inmates; and anyone looking for information, news, and support regarding prisons or prison related issues.
RemedyFind
RemedyFind is an international and unbiased site (not sponsored by any drug companies etc.) that lets individuals rate the effectiveness of the treatments they have used for specific health conditions.
Roche
Pharmaceutical web site that features information
on hepatitis C with resources for medical providers and patients. Offers various services for people on HCV therapy including assistance with insurance reimbursement. May also provide medications at no cost based on financial need for those that qualify.
San
Luis Obispo County Hepatitis C Task Force
Offers health and benefits counseling, financial assistance,
volunteer services, informational forums,and testing information
for the hepatitis C community.
Schering
Pharmaceutical web site that features information on
hepatitis C with resources for medical providers and patients. Offers various services for people on HCV therapy including assistance with insurance reimbursement. May also provide medications at no cost based on financial need for those that qualify.
Sex & Hepatitis C
A great site dedicated to helping sufferers sort out the risks of sexual transmission and learn the best practices for avoiding it.
Texas Liver Coalition
The Texas Liver Coalition website offers updated information about hepatitis and liver disease, including answers to frequently asked questions. Visitors can also find locations of our Texas support groups for patients and their families. The site includes other practical information about liver disease, especially hepatitis C.
Veterans
Administration – Hepatitis C Resource Center
Click on “Education” and then “Provider
Education” for a thoughtful and up to date review of
current drug therapies and much much more. Keep in mind recommendations
are based on study population, i.e., veterans, primarily males.
Wisconsin Hepatitis C Program
AUSTRALASIA
Australia:
ACT Hepatitis C Council
http://www.acthepc.org
Australian Hepatitis Council
http://www.hepatitisaustralia.com
Hepatitis C Council of NSW Australia
An independent community-based organization providing information, support and advocacy to people affected by hepatitis C in the state of NSW, Australia.
Hepatitis C Council of Queensland
http://www.hepatitisc.asn.au
Hepatitis C Council of South Australia
www.hepccouncilsa.asn.au
Hepatitis C Council of Victoria
http://www.hepcvic.org.au
Tasmanian Council on AIDS, Hepatitis C & Related Diseases
www.tascahrd.org.au
Hepatitis Council of Western Australia
www.hepatitiswa.com.au/
New Zealand
Hepatitis C Support Group of New Zealand
http://www.hepc.org.nz
EUROPE
England:
British Liver Trust
Hepatitis C Trust
Scotland:
C-Level (Glasgow)
France:
Fédération
SOS Hépatites
Hépatites
Reseau
Hépatite Bretagne
Hepatoweb
Hepatoweb.com est une association à but non lucratif
créer pour favoriser la présence de l'hépatologie,
de la gastro- entérologie et de l'alcoologie sur internet
et autres supports multimédia. Aider à la formation
postuniversitaire des hépato-gastro-entérologues
et médecins ainsi que leurs collaborateurs. Promouvoir
l'usage des nouvelles technologies de l'information et de
la communication au service de la médecine et de la
santé.
Comité
Régional d’Education pour la Santé d’Ile-de-France
Germany
http://www.hepatitis-c.de/
Information auf Deutsch, Amerikanisch und Franzoesisch. Hier gibt's alles ueber Ernaehrung bis Behandlung und Transplantation. Hat auch hep-art/logos und email Nachrichten.
http://www.leberhilfe.org
Ein Projekt fuer Deutsche Selbsthilfe Gruppen; in Conjunktion mit dem Deutschen Hep-Net.
http://www.elsevier-deutschland.de/
Hier ist die Online Version des "Roche Lexikon Medizin"--suche nach hep C and viel, viel mehr.
http://www.hepfinder.de
Deutsche und Internationale Informations Site, der eine grosse Auswahl von Literatur und anderen Informationsquellen hat.
Italy
ASSOFADE
Fondazione per la ricerca ospedaliera sulla prevenzione, diagnosi
e terapia delle malattie epatiche.
Netherlands
Nationaal Hepatitis Centrum
www.hepatitis.nl
Russia
http://www.hcv.ru
Switzerland
SEVHep
http://www.sevhep.ch/
The primary goal of the SEVHep is to maintain a Swiss network of competence in the field of viral hepatitis, focusing on both preventive measures and management of all clinical consequences, from acute to chronic hepatitis to cirrhosis and hepatocellular carcinoma. The group has published recommendations - essentially concerning hepatitis therapy and vaccination - in the official bulletin of the Swiss Federal Office of Public Health or in the official journal of the Swiss physicians (FMH).
MIDDLE EAST
Israel
HETZ
www.hepatitisonline.org
The only hepatitis C and hepatitis B organisation in Israel
SOUTH AMERICA
Argentina
Hepatitis C 2000
La Organización Hepatitis C 2000 trabaja desde fines de 1999 en todos los temas que tengan que ver con la hepatitis c y hepatitis en general.
El trabajo es realizado desde la Ciudad de Pinamar - Argentina - donde está su central y vía Internet desde más de diez países de habla castellana.
Online Support Forums, Listservs and Chat Rooms
Hep C Nomads
The Nomads is an online support forum for those affected by Hepatitis. Originally set up for HCV patients they have now included a HBV section on their forum. It is a valuable resource for information with items from the latest research, published papers on HCV, treatment and new drug trials. It can only be viewed by registering and all membership is free. It does focus on the social side of support and is a good place to find like minded people in a similar predicament. Carers and health professionals are also members and all are welcome.
http://www.hepcnomads.co.uk/index.htm
HEPV-L
There is an excellent Hepatitis support discussion group (mailing list) in the USA called HEPV-L. To subscribe, send an e-mail message to: HEPV-L-subscribe-request@LISTSERV.ICORS.ORG
and in the body of the message type: SUBSCRIBE HEPV-L FIRSTNAME LASTNAME (that’s your first and last name).
Seeker's" Hepatitis C Support
http://forums.delphiforums.com/hepc/start
CHAT ROOMS:
HEP C-MO Telechats and Discussion Room
http://www.hepcmo.org/
Join us weekly for our toll-free, Hep C telechats, a place for information, education and general chat, especially for those who are not able attend support groups, The call is free and is scheduled every Tuesday from 7pm - 9pm Central Time (Please check for the time in your area). We're staffed with moderators and hep C professionals who are available to answer your general questions about hep C treatment and management. Weekly topics (Please note: We are not doctors. For questions of a medical nature, you will be referred to your primary care professional). For information, or to register for the chats, please go to:
http://www.hepcmo.org/, or if you do not have access to a computer, call: 1.888.436.HEP C (4372) to register over the phone and receive the phone number and access code.
Hep-C Heppers For Awareness http://forums.delphiforums.com/between/start
http://forums.delphiforums.com/hepc/chat
http://forums.delphiforums.com/
hopenow1/chat
HCVS - hcvsupport.org
A member-based online Hepatitis C support forum and chat room founded in 2005 and located in the U.S. Priding itself in offering worldwide support, encouragement and camaraderie to all afflicted with Hepatitis C through the first-hand knowledge and experiences of those who have the virus. Boards range from the newly diagnosed to those awaiting liver transplantation. There is also a board staffed by a licensed nurse practioner and registered nurse in the field of Gastroenterology/Hepatology to provide answers to common Hepatitis C and treatment questions.
Hepatitis Neighborhood
http://janis7hepc.com/our_chat_room
_and_message_boards.htm
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