Hepatitis C Resources on the Web
UNITED STATES AND CANADA
AIDS Action’s Hepatitis Hotline – 1-888-443-4372
American Liver Foundation
Their mission statement: to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease. They make available Patient materials on all types of hepatitis.
Americans with Disabilites Act
For information and technical assistance about the Americans with Disabilities Act (ADA) contact the ADA Information Line 800-514-0301 (voice) 800-514-0383 (TTY). ADA Specialists are available to provide ADA information and answers to technical questions on Monday, Tuesday, Wednesday, and Friday from 9:30 a.m. until 5:30 p.m. or on Thursday from 12:30 p.m. until 5:30 p.m. (Eastern Time).
The California Hepatitis Alliance (CalHEP) seeks to reduce the scope and consequences of the hepatitis B and C epidemics, which disproportionately affect California’s ethnic communities and the socioeconomically underserved. Committed to culturally competent public education and awareness, CalHep focuses on sound public health policy and advocacy to improve California’s public health approach to liver wellness.
Centers for Disease Control – Hepatitis
Information on HAV,HBV and HCV – simple and easy to understand. Patient materials in English and other languages.
Centerwatch list of hepatitis C clinical trials by state
Dietitians of Canada
A good resource for nutritional information for providers and patients.
Information on Eastern treatment and healing approaches by Misha Ruth Cohen, O.M.D., L.Ac. Features include an overview of Chinese medicine, HIV Wellness Center, and Hepatitis Help Area.
Dr. Ben Cecil’s Website
Offers information on the treatment and advocacy of hepatitis C offered by Ben Cecil, MD. Features include a medical photo gallery with clinical photos and captions.
Drugs@FDA, a piolot project, is a searchable Web site containing information about prescription, over-the-counter, and discontinued drugs. It includes links to drug approval letters, labels, and review packages.
DrugWatch.com is a comprehensive Web site database featuring extensive information about thousands of different medications and drugs currently on the market or previously available worldwide. DrugWatch.com includes up-to-date information about prescription and over-the-counter medications and includes details about associated side effects to aid in the protection of patients and consumers.
Fair Pricing Coalition
The Fair Pricing Coalition (FPC) is a group of community treatment activists advocating for fair and sustainable pricing of HIV and viral hepatitis drugs in the United States.
The global on-line resource for all aspects of gastroenterology, hepatology and endoscopy.
Harm Reduction Coalition
Harm Reduction Coalition was founded in 1993 and incorporated in 1994 by a working group of needle exchange providers, advocates and drug users. Good information on how to connect locally and on hepatitis C.
This link brings you to all of Health Canada’s resources, programs and publications on hepatitis A, B and C in both English and French.
Help‑4‑Hep is a non-profit, peer-to-peer helpline where counselors work with patients to meet the challenges of hepatitis C head-on. Callers talk one-to-one with a real person, typically someone who’s had hepatitis C touch their own life. And they talk about the specifics of their particular situation. The phone call, support and information are all provided free of charge.
Hep C Caring Ambassadors Program
HCV Manual from Caring Ambassadors Program: Hepatitis C Choices. This wonderful resource is some 400 pages long. It covers all aspects of treatment including Western allopathic medicine, ayurvedic, naturopathic, TCM and Mind-Body work….and much more. You’ll be amazed.
Hep Free Hawai`i
Aloha! Welcome to Hep Free Hawai`i! We are a community-driven awareness and support campaign dedicated to reducing the burden of viral hepatitis and liver disease on our people and communities in Hawai`i.
Hepatitis By The Numbers
The Caring Ambassadors Program “Hepatitis By The Numbers” Advocacy Map has been developed as a tool for you, the constituent, to use when calling your elected officials about hepatitis B or C. The map provides a quick snap shot of specific populations within each district. Depending on your district, you may have populations that are disproportionately affected by hepatitis B or C. Click on your district – you may be surprised. You can contact your elected official from the links provided.
Hepatitis A, B, and C Prevention Programs Information and Programs for People at Risk
This website showcases programs across the United States that work to prevent hepatitis A, B, or C in people who are at risk for infection. The site also features general information on hepatitis B and hepatitis A vaccination, special topics related to viral hepatitis, and links to other organizations and resources.
Hepatitis C Association
Provides education on the hepatitis C virus for the general public and for medical professionals. Promotes awareness of hepatitis C through programs through prevention, protection and healthy practice programs.
Hepatitis C New Drug Research
A comprehensive website that posts research papers, the latest news and the latest conference reports.
Hepatitis Drug Interactions
The purpose of this site is to provide a clinically useful, reliable, comprehensive, up-to-date, evidence-based drug-drug interaction resource, freely available to healthcare workers, patients and researchers.
Hepatitis Education Project
Created to help raise awareness among patients, medical personnel and the public about the facts concerning hepatitis patients and the resources available to help those who live withthe disease. Highlights include newsletter, links, and support group handbook.
Hepatitis Foundation International
The Hepatitis Foundation International (HFI) is dedicated to the eradication of viral hepatitis, a disease affecting over 500 million people around the world. We seek to raise awareness of this enormous worldwide problem and to motivate people to support this important – and winnable – battle.
Hepatitis Prison Coalition
The National Hepatitis Corrections Network (NHCN) is a coalition of medical providers, administrators, researchers, community-based organizations and other public health advocates working together to increase access to hepatitis prevention, testing and treatment in correctional facilities.
Informational site providing resources, education, and support for the hepatitis C community. Features include a newly diagnosed section, art for healing gallery, and a hepatitis C culture page which lists films and music about hepatitis C. Home of Peppermint Patti’s FAQ (English & Spanish) the Advocate’s Guide to Hepatitis C, and the hepc.bull.
HEP is an award-winning print and online brand for people living with and affected by viral hepatitis. Offering unparalleled editorial excellence since 2010, HEP and HEPmag.com are the go-to sources for educational and social support for people living with hepatitis.
Home of the audio CD “Self-care for Hepatitis C: Applied Meditation for a Healthy Liver” by Margo Adair and Robin Roth.
The Delaware Valley Hepatitis Treatment, Research and Education Center (HepTREC) is a not-for-profit organization established in 2002 to reduce the impact of viral hepatitis in the Delaware Valley.
Provides accurate, timely information about treatment for HIV/AIDS, chronic hepatitis B and hepatitis C, and co-infection with HIV/HCV and HIV/HBV. New information is posted regularly.
Immunization Action Coalition
Showcases programs across the United States that work to prevent hepatitis A, B, or C in people who are at risk for infection, including adults and adolescents.
Inside Books Project
Inside Books Project offers a Resource Guide with helpful resources targeted to inmates and their loved ones. The entire IBP Resource Guide is included below both as an online resource and in downloadable PDF form.
Medscape – Hepatitis C
Information for medical providers and patients. CME programs, ask the expert program.
National AIDS Treatment Advocacy Project is a New York non-profit organization providing information and news on hepatitis B and C, and HIV. Features include newsletter, radio shows, and events.
National Canadian Research Training Program in Hepatitis C
The NCRTP-HepC seeks to build research capacity and awareness in hepatitis C that will one day result in better management of the disease by providing stipend support and training to graduate, post-doctoral students and MDs with demonstrated excellence and a passion for hepatitis C research. The training program employs the knowledge and experience of twenty-eight mentors across Canada from multiple disciplines; each mentor is recognized for their expertise in various areas of hepatitis C research and their ability to train excellent researchers.
National Conference on State Legislators Web Site
Follow this link for a State by State List of Pharmaceutical Assistance Programs for Seniors, Disabled, Uninsured and others.
National HCV Helpline: 877-HELP-4-HEP (877-435-7443)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDH), NIH
Simple and easy to understand patient information and brochures on hepatitis C.
National Institutes of Health, Alternative and Complementary Medicine – Hepatitis C
Information on various forms of complementary and alternative medicine including herbs.
National Training Center for Integrated Hepatitis HIV/STD Prevention Services
The National Training Center provides training to frontline workers in community based organizations and clinics on hepatitis prevention, diagnosis, management, treatment and integration.
National Viral Hepatitis Roundtable
Their mission statement: The National Viral Hepatitis Roundtable is a broad coalition working to fight, and ultimately end, the hepatitis B and hepatitis C epidemics. We seek an aggressive response from policymakers, public health officials, medical and health care providers, the media, and the general public through our advocacy, education, and technical assistance.
Hepatitis C New Drug Research and Liver Health
A comprehensive website that posts research papers, the latest news and the latest conference reports.
NIH Consensus Development Conference on Hepatitis C
The consensus statement for the NIH Consensus Development Conference on the Management of Hepatitis C: 2002, held June 10-12, 2002, is now available on the Office of Disease Prevention (ODP) Web page.
North American Needle Exchange Network (NASEN)
NASEN is a national network of syringe exchange programs (SEPs), those who support them, and the people they serve. NASEN’s purpose is to ensure that drug users have access to the quality disease prevention and health care services that other citizens of our society enjoy..
Information for patients–personal stories and on-line videos featuring real people with hepatitis C.
Pacific Hepatitis C Network
PHCN exists to support a community-based response to hep C in BC, the core of which is the voice of people living with hep C.
Parents of Kids with Infectious Diseases
Supports families whose children have been affected by viral hepatitis, HIV/AIDS and other diseases, and educates the public about effective disease prevention practices. Highlights include organ donation, help for families, and a Just For Kids section.
Patient Access Network Foundation
A foundation that provides medication co-pay assistance for those who qualify Click Here
We produce a directory that is free to prisoners upon request, and seek to work in solidarity with prisoners, ex-prisoners, their friends and families. We also work with teachers and activists on many prison issues.
RI Defeats Hep C
Dr. Lynn E. Taylor’s project, Rhode Island Defeats Hep C, aims to make Rhode Island the first state to eradicate the Hepatitis C virus infection (HCV).
San Luis Obispo County Hepatitis C Task Force
Offers health and benefits counseling, financial assistance, volunteer services, informational forums,and testing information for the hepatitis C community.
U.S. Preventive Services Task Force
The U.S. Preventive Services Task Force makes recommendations for testing for certain conditions and diseases. Their recommendations can affect whether a physician will order a test or even alert their patients that there may be a disease that they could or should be tested for. This link is to the Screening for Hepatitis C Virus Infection in Adults recommendations published in 2013.
Veterans Administration – Hepatitis C Resource Center
The Department of Veterans Affairs (VA) leads the country in hepatitis screening, testing, treatment, research and prevention. This site provides information both for health care providers and for Veterans and the public.
Viral Hepatitis Prevention Coordinators List
Almost every state in the United States has an Adult Viral Hepatitis Coordinator who is responsible for some aspect of viral hepatitis. Visit their website for more information.
World Hepatitis Alliance
World Hepatitis Day is coordinated by the World Hepatitis Alliance, a non-governmental organisation that represents approximately 200 hepatitis B and hepatitis C patient groups from around the world. As a coalition of advocacy groups, the World Hepatitis Alliance is a global voice for the 500 million people worldwide living with chronic viral hepatitis B or C.
Hepatitis ACT Resource Centre
Australian Hepatitis Council
Hepatitis C Council of NSW Australia
An independent community-based organization providing information, support and advocacy to people affected by hepatitis C in the state of NSW, Australia.
Hepatitis C Council of Queensland
Hepatitis C Council of South Australia
Hepatitis C Council of Victoria
Tasmanian Council on AIDS, Hepatitis C & Related Diseases
Hepatitis Council of Western Australia
Hepatitis C New Zealand Peer Support Project
Hepatitis Foundation of New Zealand
European Liver Patients Association
This is an umbrella organisation made up of 13 patient groups from 10 European and Mediterranean Basin countries which seeks to ensure that treatment and care are harmonised across Europe to the highest standards.
British Liver Trust
Hepatitis Scotland (Glasgow)
The national voluntary sector organisation funded by the Scottish Government to improve responses to viral hepatitis, providing and sharing information and resources for patients and professionals.
Fédération SOS Hépatites
French language forum for HCV and HIV/HCV coinfection: “Bienvenue sur ce site traitant de l’hépatite C et des co-infections. Ce site est ouvert aux patients, à leur entourage, au grand public et aux professionels de santé.”
Hepatoweb.com est une association à but non lucratif créer pour favoriser la présence de l’hépatologie, de la gastro- entérologie et de l’alcoologie sur internet et autres supports multimédia. Aider à la formation postuniversitaire des hépato-gastro-entérologues et médecins ainsi que leurs collaborateurs. Promouvoir l’usage des nouvelles technologies de l’information et de la communication au service de la médecine et de la santé.
Information auf Deutsch, Amerikanisch und Franzoesisch. Hier gibt’s alles ueber Ernaehrung bis Behandlung und Transplantation. Hat auch hep-art/logos und email Nachrichten.
Ein Projekt fuer Deutsche Selbsthilfe Gruppen; in Conjunktion mit dem Deutschen Hep-Net.
Hier ist die Online Version des “Roche Lexikon Medizin”–suche nach hep C and viel, viel mehr.
Nationaal Hepatitis Centrum
Swiss Association for the Study of the Liver
The Swiss Association for the Study of the Liver is a group of Swiss scientists and clinicians interested in liver biology and disease. It is a daughter society of the Swiss Society for Gastroenterology.
Society for Hemophilia Care- SHC India
Address of meeting: 129, Amberhai, Opp. Church, Sector-19
City & State: Dwarka, New Delhi-110075.
Days & times: Not held regularly
Contact Name: Vijay Kaul
Contact Phone #: 91 11 28080112,
Handset: 0 9810173448
Contact Email: admin@NOTreallyHEREshcindia.org
Fundación HCV Sin Fronteras
Online Support Forums, Listservs and Chat Rooms
There is an excellent Hepatitis support discussion group (mailing list) in the USA called HEPV-L. To subscribe, send an e-mail message to: HEPV-L-subscribe-request@NOTreallyHERELISTSERV.ICORS.ORG
and in the body of the message type: SUBSCRIBE HEPV-L FIRSTNAME LASTNAME (that’s your first and last name).
Seeker’s” Hepatitis C Support
Hep-C Heppers For Awareness http://forums.delphiforums.com/between/start
HCVS – hcvsupport.org
A member-based online Hepatitis C support forum and chat room founded in 2005 and located in the U.S. Priding itself in offering worldwide support, encouragement and camaraderie to all afflicted with Hepatitis C through the first-hand knowledge and experiences of those who have the virus. Boards range from the newly diagnosed to those awaiting liver transplantation. There is also a board staffed by a licensed nurse practioner and registered nurse in the field of Gastroenterology/Hepatology to provide answers to common Hepatitis C and treatment questions.
Click on “Message Boards”
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